Comments on: ouch http://kayray.org/2016/08/18/ouch/ Thu, 01 Sep 2016 15:09:43 +0000 hourly 1 https://wordpress.org/?v=5.9.11 By: kara http://kayray.org/2016/08/18/ouch/#comment-100534 Thu, 01 Sep 2016 15:09:43 +0000 http://kayray.org/?p=4199#comment-100534 In reply to Vijay.

I’m glad you like William! I’m sorry to tell you that only the first two books were published before 1923 and are in the Public Domain, so I can’t record any of the others for librivox. Links for others who might want to listen:

https://librivox.org/just-william-version-2-by-richmal-crompton/

http://librivox.org/more-william-by-richmal-crompton/

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By: Vijay http://kayray.org/2016/08/18/ouch/#comment-100525 Thu, 01 Sep 2016 12:38:06 +0000 http://kayray.org/?p=4199#comment-100525 Kara:

I have just found your “Just William” recording on Librivox. You are absolutely amazing. Thank you! Have you done or are you planning further Richmal Crompton books? After several decades of having read them as a child, William still manages to amuse!

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By: Janelle http://kayray.org/2016/08/18/ouch/#comment-100128 Wed, 24 Aug 2016 15:52:04 +0000 http://kayray.org/?p=4199#comment-100128 So sorry to hear this – we will be praying you feel better soon!

I just want you to know how much our family loves you and all you do for librivox. You are, hands down, our favorite reader and have been listening to your voice for years!! My kids talk about you and when California is every brought up my youngest always mentions that’s where KayRay lives!! I know you don’t know us, but you have invested a ton into our family and our homeschool!!

Hope you feel better soon, and know that depression is a yucky place, but you are so valued and loved by so many who many never even tell you!!

Blessings!
The Cole Family!!

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By: Mike Wilson http://kayray.org/2016/08/18/ouch/#comment-100054 Tue, 23 Aug 2016 03:47:13 +0000 http://kayray.org/?p=4199#comment-100054 Oh no, I’d hoped that the 1600 would go much easier for you. Please hang in there!
And I downloaded your Dracula. It was really very good; I can’t believe that you were feeling badly or on any kind of medication at all… it certainly doesn’t sound like it!

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By: Reina http://kayray.org/2016/08/18/ouch/#comment-100006 Mon, 22 Aug 2016 05:44:11 +0000 http://kayray.org/?p=4199#comment-100006 I was on Tyvaso a few years ago, it was horrible with the hot face & constant nausea. I really hope uptravi gets better.

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By: kara http://kayray.org/2016/08/18/ouch/#comment-100000 Mon, 22 Aug 2016 00:53:43 +0000 http://kayray.org/?p=4199#comment-100000 In reply to Reina.

No, I go to UCSF. Stanford is closer but they don’t take my insurance.

I’m on Adcirca and Opsumit (and lots of other things for other health problems). No side effects from those.

Have you ever been on Tyvaso? I was on it for years and they think that’s why I’m tolerating the Uptravi so well. Honestly, even as awful as they are, the side effects from Uptravi are better than the ones from Tyvaso, for me, so stick with the Uptravi if you can! Take it slow and do whatever you can to rest and recover. You might try getting a couple of massages. I try to schedule two or three in the first weeks after I go up to a new dose. I think they help a little with the body aches and sore joints.

Hang in there! It’ll get better!

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By: Reina http://kayray.org/2016/08/18/ouch/#comment-99996 Sun, 21 Aug 2016 21:43:00 +0000 http://kayray.org/?p=4199#comment-99996 I’m only on 200mcg, had two days of 400mcg and I couldn’t bare it :( so my doctor is letting me stay at 200mcg for a little. Then what idk.

The jaw pain is odd, very sharp pinch usually with the first two bites only but gosh!

I’m also on Adcira & Letaris, similar type of med, but much more minor side effects when I started out. Do you visit Stanford? I feel like I’ve seen you before.

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By: kara http://kayray.org/2016/08/18/ouch/#comment-99959 Sun, 21 Aug 2016 00:22:32 +0000 http://kayray.org/?p=4199#comment-99959 In reply to Reina.

Thanks, Catharine :)

Hang in there, Reina. It’ll get better. Read my previous posts for a lot of different ways to manage the side effects and ask your doc if you can hold off on increasing your dose until after you’ve gotten used to this dose, so you can have a few days of feeling good in between.

That jaw pain is freaky, isn’t it? They can’t explain why it happens. Do you get it right when you bite into food, really badly and then it gets better after a minute? If so, try taking the tiniest taste of the food. You jaw will hurt just a tiny bit. Take tiny bites until you’re used to that food.

I haven’t found anything that helps the headaches except sleep (sometimes) and time.

I’m almost 3 weeks into 1600mcg and it’s still kicking my butt, but at least this previous week was slightly better than the first two. UGH.

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By: Reina http://kayray.org/2016/08/18/ouch/#comment-99957 Sat, 20 Aug 2016 23:48:03 +0000 http://kayray.org/?p=4199#comment-99957 I just started on uptravi and am on my 2nd week. This joint pain, headaches and jaw pain is so frustrating. I just want to sleep all the time so I don’t have to deal with the pain. It’s getting me down too. I don’t know how much I can take. I hope when I get to the max does the side affects will lessen because I can’t imagine living like this forever. I just want to cry. :(

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By: Catharine http://kayray.org/2016/08/18/ouch/#comment-99928 Sat, 20 Aug 2016 03:32:20 +0000 http://kayray.org/?p=4199#comment-99928 Hm, shouldn’t have put the pointy brackets in the previous response I bet. Let’s try this again…

::HUGS::

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