Comments on: Starting Remodulin SQ http://kayray.org/2017/05/07/starting-remodulin-sq/ Tue, 21 Nov 2017 02:51:14 +0000 hourly 1 https://wordpress.org/?v=5.9.11 By: kara http://kayray.org/2017/05/07/starting-remodulin-sq/#comment-122247 Tue, 21 Nov 2017 02:51:14 +0000 http://kayray.org/?p=4344#comment-122247 In reply to jane.

I’m glad to answer your questions! I’ll email you :)

]]> By: jane http://kayray.org/2017/05/07/starting-remodulin-sq/#comment-122243 Tue, 21 Nov 2017 01:44:58 +0000 http://kayray.org/?p=4344#comment-122243 Hi,
I wanted to know how your Remodulin treatment is going and if you have found a good way to control pain. I’m on Remodulin for 7 months now and I find pain is becoming a very serious problem. You mentioned CBD oil – does it still work at higher infusion rates? (I guess you figured pain increases with the infusion rate, not with over all dosage).
I read about your problems with the alergic reaction – I also had it for couple of weeks but it fixed when I stopped using adhesives and just left the infusion site uncovered.
I hope you’re doing great, I’m sorry if I’m bothering you with my questions, but it seems to be very hard to find people willing to discuss their Remodulin treatment.
Also, I noticed you said your infusion site is on your thigh, could you tell me where exactly you have put it and what areas are in pain in worst days.
I’ve so far put it on my belly and on my arm, I found the arm preferable, but lasting less. When on my belly, I can’t walk for days and I feel pain and get swollen from my ribs to my pubic bone. It sucks. On my arm, I get all my arm swollen for days, can’t use it much for about a week, but at least I can walk. And seems to bother me less. But current record on my arm is 1 month, on my belly, 6 weeks. I’m obviously far from the goal of 8 weeks.
Anyway, if I’m too annoying, please excuse me. I hope you get your allergy under control and your treatment works great for you. I wish you all the best!

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