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On Friday, exactly two weeks after my final dose of Prednisone, and with the Prednisone side-effects nearly gone, the full-body itch returned. My entire skin hurts. I don’t know if you’ve ever noticed, but in large quantities the “itchy” sensation is actually a special kind of pain that makes you want to claw your skin off with your fingernails…

So I started back up on the hydroxyzine and have been so groggy for the last two days that I can scarcely move. Groggy and itchy and in terrible terrible pain from the Remodulin infusion site I started on Thursday.

Now it’s very early Sunday morning, still dark, and I woke up from the itchiness.

I have leftover Prednisone so just now I broke a tablet up and took about 5mg. Dr. Nguyen told me he thought the itch would return, and that I’d need to be on a steady low dose of Prednisone (10 mg) but oh how I was hoping that wouldn’t happen. But here we are.

Dreading the return of the Prednisone side effects. Dr. Nguyen said they wouldn’t be bad on a very low dose. We’ll see. I’ll try to get an appt with him Tuesday (he’s out of the office on Mondays) and get an official prescription for whatever dose of Prednisone he thinks might work. Until then I’ll take 5mg a day and hope it keeps the allergic reaction under control.

I had three good days between the diminution of the Prednisone side effects and the return of the itch. I made dinners for family, babysat children, and recorded an audiobook. (see below) Three good days at the top of the rollercoaster and now it looks like I’m heading downhill again.

I don’t know how much more of this I can take.

Here comes a non-medical post for you. Enjoy ;-)

Walter the Lazy Mouse, by Marjorie Flack, is an old family favorite. “Have you seen my father and mother and sisters and brothers go by?” I gave a hardback copy to Rosie for her fourth birthday, and she adores it. We’ve all read it aloud to her over and over again, so I decided I should record it for her, and for you, too!

I’ve just finished it up and put all ten chapters into my podcast feed. There’s a link in the right sidebar somewhere, or you can search the iTunes podcast app for “Kayray Reads to You”, or you can go directly to
https://archive.org/details/KayrayReadsToYou6.

Or click ’em from here:

01 How Walter Mouse Lost his Home
02 How Walter Finds a New Home
03 How Walter Makes Furniture
04 How Walter Does Nothing
05 How Walter Learns to Swim
06 How Walter Teaches School
07 How Walter Needs His Coat
08 Danger in the Woods
09 How Walter Returns Home
10 Walter Goes Back to Mouse Island