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June 21st, 2017 — 8:20am


Me, June 2017, looking hot hot hot.

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hello world

June 12th, 2017 — 11:03am

I’ve been sick with a cold for the last week (my typical sore throat -> stuffy head -> cough) but it’s not terrible and I’m on the mend.

The Remodulin SQ is going well. I’m up to 0.012 mL/hour (goal is 0.03mL/hour). I’m still not sure I notice much difference in my shortness of breath (SOB) but my mental stamina is much greater than even a month ago. I did a few small sewing projects, and I’ve been reading again! (This might be because I’m not on Uptravi anymore, but either way it’s good.)

I feel like I haven’t talked about anything but Remodulin here for a long time. Sorry about that. It’s just a HUGE thing for me. I’m pleased that I got accustomed to the pump very quickly. It doesn’t bother me at all. I sewed a few different carrying systems for it and finally made one that works well — a purple flannel pocket on a not-too-tight elastic band that I can wear slung kinda low around my hips.

I’ve been reading Agatha Christie on my kindle every night for bedtime, plus I went to the library last week and got three great books which I read in quick succession:

My Not So Perfect Life by Sophie Kinsella (it’s always so much fun to read a new one of her novels!)
Edgar and Lucy by Victor Lodato (amazing)
Between Them by Richard Ford (a lovely memoir)

Then I returned them on Saturday (even though I was sick) and got a new stack! Right now I’m reading American Eclipse by David Baron, which is about the solar eclipse of 1878.

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