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Archive for January 2023


Tuesday

January 31st, 2023 — 6:15pm

Jesus the fatigue is real. What is going on?? Had to spend the afternoon napping again. I did manage to take an outdoor very slow walk for six whole minutes without resting in the middle so that’s something.

Took a bath this morning and then made really amazing soup for breakfast and lunch. Based it on a chicken soup recipe but I didn’t want actual chicken in it so I altered it quite a bit. It’s really kind of neat that Dave and I each cook for ourselves most of the time, because I can make small batches of experimental recipes and not worry about anyone else’s likes and dislikes.

Kara’s Noodle Soup

Makes two very hearty servings

Put 5 cups of chicken broth in a saucepan.

Add 2 peeled and sliced carrots, a few inches of sliced leek or celery, and a spoonful of grated ginger (keep your ginger root in the freezer and grate it frozen. No need to peel)

Bring to a boil, then turn the heat to low and simmer while you make noodles:

Mix a pinch of salt with a cup of flour. Mix in an egg, then add a spoonful of milk at a time and knead well to make a very stiff, smooth dough. Let rest ten minutes, then roll out 1/8 thick with lots of flour and slice into noodles. Drop noodles a few at a time into the soup and simmer for ten minutes.

Mix a spoonful of cornstarch with a little water to the consistency of cream and add to your simmering soup until the broth is the thickness you like. Done!

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Tuesday morning

January 31st, 2023 — 8:26am

No alarms last night, which is good, but why not? Lol. I used the same fresh thigh site as the previous night.

Hypervigilant all night, and there was much snoring but I was too tired to switch rooms so I’m feeling kinda crummy. Gonna have a bath this morning so that will probably perk me up.

It has been below freezing every night and not much higher in the daytime, but dry dry dry so no snow. Phooey.

Today I might finish my 100 circles sampler. There are only 6 remaining!

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Monday

January 30th, 2023 — 8:10pm

Nurse Sarah has a theory that maybe there’s not enough subcutaneous fat on my thighs, where I have my sub-q sites, and it’s confusing the pump. It’s not a terrible theory… but why is it a problem only at night?

She says I should be able to “pinch an inch” of fat and skin, and suggested starting a site on my abdomen. However, I have no more than 5/8” of pinchable fat anywhere on my abdomen. The absolute thickest fat I have (and it’s still not an inch) is on my thighs, which is the spot I use. I suggested switching to an infusion set that jams the needle in at an angle, so we can try to keep the catheter in the fat layer. She’s gonna order some of those for me. She has still not heard back from the manufacturer about this problem.

So tired and kinda low. Big fatigue and lots of pain today. I skipped my exercises but I did bundle up and go outside for a very slow, short walk. Was out there for 6 1/2 minutes but had to take a rest twice so maybe five minutes of actual walking?

Ate lots. Blintz for breakfast, salad and refried beans and cheese for lunch, the rest of my cottage pie for dinner, and I’m about to go get another dish of beans and cheese and tomatoes for a bedtime snack.

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Monday morning

January 30th, 2023 — 8:49am

Had a Remunuty alarm last night, the totally false one. (“move pump closer to infusion site”) But at least there was only one, and it happened at 11pm when I’d only been asleep for an hour so it didn’t destroy me.

I guess this is my life now. But if it’s only once per night I can deal with it.

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Sunday night

January 29th, 2023 — 8:56pm

Hoo boy it was sunny today but so cold! I did most of my exercises and took a 4 1/2 minute walk and thought my nose would freeze. And the wind nearly knocked me down!

Three good meals plus snacks today. Oatmeal for breakfast, half-size homemade BLT for lunch (Dave bought low-salt bacon which was good, and he cooked it soft and floppy the way we both like it), and a big portion of my cottage pie for dinner. Hazelnuts, choc chip cookies, and cheese for snacks. Yay me!

And I was able to stay up, in the living room, till 8:30pm! We watched tonight’s episode of the Pottery Throwdown and Dave rubbed my feet. *heart eyes* Maybe I can get my sleep schedule back to normal soon.

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Kara’s Mini Veggie Cottage Pie

January 29th, 2023 — 8:20am

Kara’s Mini Veggie Cottage Pie

Start a few potatoes boiling for the mash.

In a small cast iron skillet, saute half a medium onion and whatever veggies you have handy, diced. I’ve used carrots, celery, beets, leeks, green beans, cabbage, peppers, and frozen peas. The peas are a constant — I don’t think it would be right without them — but everything else varies. If all you have is peas and an onion, go for it. I don’t think you can go wrong as long as you have peas!

Get your little skillet nearly full of veggies (they’ll cook down) and add about half a cup of water or broth. I use “Better Than Boullion” beef broth. Add some herbs and a little salt. Turn the heat down, cover, and cook till the veggies are tender but not mushy. Then mix a spoonful of flour with enough water to make a slurry and stir it in to the veggies to thicken the gravy. When thickened, turn off the heat.

Meanwhile keep an eye on the potatoes and, when tender, mash them with LOTS of butter, cream/milk, and cheddar cheese. I dice the cheese instead of grating it. So much easier.

Then dollop the mash over the veggies, stick the skillet into the oven on a tray in case it bubbles over, and broil until the potatoes get golden brown peaks. YUM!

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Sunday morning

January 29th, 2023 — 8:05am

No alarms last night! Current hypothesis: the CPAP’s RF interference was the main problem, and the Saturday night alarm was a genuine occlusion alarm, which occurred because I was using a scarred old infusion site. Now I’ve begun starting two separate infusion sites. A comfy old scarred one for daytime and a painful new one for night. Why is the scarring only a problem at night? Gravity? Or the fact that I sleep without moving very much? I’m careful not to sleep on the side that has the current site. Oh well, the “why” doesn’t matter much I guess, as long as I can SLEEP.

My sleep, since I’m still hypervigilant, is not stellar, but it’s tolerable and should get better if I’ve actually solved the False Alarm Problem.

The new thing I’m freaked out about is how low my oxygen saturation is. It got very low while I was sick and coughing for a month, and then my pulse oximeter died so I couldn’t test for a few weeks. Just got a new one and… oh dear. I don’t FEEL like I’m in the low-to-mid 80s at rest, but that’s what it says. And dropping to mid 70s when I walk from room to room. Tested Dave and he was high 90s, as he should be, so it’s not malfunctioning equipment.

So… I think I need to do my stupid boring little exercises regularly even though it’s scary. And I need to take stupid short slow little walks. That should strengthen my heart a little, maybe? I did three of my exercises yesterday and took a three-minute walk out in the fresh air. Will try very hard to do the same today.

I weigh 105 again and my face is nice and round! I cooked a beautiful little veggie cottage pie again yesterday and ate half. This one was super colorful because I used purple onion, yellow beets, orange carrots, green peas, and white leeks. It was so pretty! And also delicious.

I’ll write up my recipe and post it separately…

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Saturday morning

January 28th, 2023 — 6:01am

Wrapped the thing snugly in tinfoil to protect from stray RF. Switched to sleeping in guest room at 2am because of Snoring Championship.

Beep beep beep at 5am

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Friday evening

January 27th, 2023 — 6:08pm

Although the damn thing woke me up again last night, I’m not in despair. I feel like we’re on the right track. I think the RF from Dave’s CPAP was part of the problem for sure, because the situation has been much better since we eliminated that factor. Here are two possible explanations for last night’s alarm.

1) Another zap of rogue RF. Dave says it could be the telco running high-powered tests in the middle of the night, or a neighbor doing something weird, or a cop car cruising past with a high-powered radio, or something like that, that for some reason penetrates the bedroom but not the guest room.

2) The alarm I got was one that I imagine could, maybe, have been legitimately caused by my scar tissue. This seems very unlikely, because what’s special about 4am when the thing had been working fine for 36 hours already? But it’s not entirely impossible.

Or it could also be options one and two at the same time.

So I have some choices. I could sleep in the guest room again and see if I ever get an alarm in there. The drawback: for how long? Or, I could start another new infusion site far away from any scar tissue. The drawback: intense pain and poor data.

However! Dave has some RF-shielding fabric with which I could sew a little protective pouch. Putting the pump and remote in there would eliminate any RF interference for sure. If I got an alarm, I’d know it was either a legit alarm or faulty equipment. Dave can’t find his RF fabric today (his workshop needs to be seen to be believed) so I’m just gonna wrap everything in tinfoil tonight. Lol. Low-tech.

Took a bath this morning, nice and clean. Went to two grocery stores for a few special Kara things — my fancy high-fat cottage cheese, raw unsalted hazelnuts, green apples — and to restock the baking supplies. Jesus H Christ prices have risen since the last time I shopped (before Christmas). My cottage cheese is $7.50 per tub. I think it was $5.50 last time. Five pounds of the good King Arthur flour? $8. So I got Gold Medal at $5. Ghiradelli chocolate chips? $8 for an 11.5 oz bag. (Notice how they’re not 12 oz bags anymore? You don’t get the full 2 cups you used to) So I bought store brand for $4.50. Saw a lot of other stuff I might normally buy, juice, tortillas, but not at those prices, buddy. I don’t NEED juice and I can make tortillas.

I also bought a 5lb sack of black beans ($7.50! Seriously!) for Henry so they can make hearty nutritious soup in the week before payday and they won’t starve.

Cross your fingers for tonight’s tinfoil experiment. The best outcome is proof of RF interference. I’m 98% certain that’s what it is (if not legit alarms).

(P.s. I know it’s not tinfoil, it’s aluminum foil. But tinfoil is more fun to say and quicker to type.)

2 comments » | Blog

Friday or whatever

January 27th, 2023 — 5:39am

5:30am. False pump alarm at 3:55. Still awake.

Just book me a room at the madhouse

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Torstai again

January 26th, 2023 — 4:40pm

I baked those chocolate chip cookies today and they are phenomenal. I used a different recipe than usual and they’re WAY better so this is my new chocolate chip cookie recipe forever! I baked about half the dough and froze about half in lumps to bake later.

Best Chocolate Chip Cookies


1 c butter, room temperature
1 c white sugar
1 c packed brown sugar
2 eggs, room temperature
2 tsp vanilla extract
1 tsp baking soda
2 tsp hot water
½ tsp salt
3 c all-purpose flour (note says can sub 1c flour for 1.5 c oats, have not tried)
2 c semisweet chocolate chips (one sack is enough)


Oven to 350 degrees F (175 degrees C).
Beat butter with all the sugar until smooth.
Beat in eggs, one at a time, then stir in vanilla.
Dissolve baking soda in hot water. Add to batter along with salt.
Stir in flour, chocolate chips.
Drop spoonfuls of dough 2 inches apart onto ungreased baking sheets.
Bake in the preheated oven until edges are nicely browned, about 10 minutes. (12.5 in my oven. Sit and watch!)

We treated ourselves to a new Kitchenaid tilt-head stand mixer for Christmas to replace the crummy bowl-lift model from Costco that we had been using and omg it is SO MUCH BETTER. Plus it’s bright red and shiny. Oh it’s wonderful, so wonderful. I want to mix ALL the THINGS. Mix mix mixxy mix!

And then I sat on the sofa and did embroidery and listened to podcasts, and then I made an actual dinner of polenta with tons of Parmesan stirred in and a chunky sauce with onion, red pepper, and eggplant. I’ve just eaten a healthy bowlful and will have second dinner and possibly third dinner later, heheh.

The difference to my mood and energy that’s made by better sleep plus relief from anxiety is astonishing.

Daylight photos of the 100 Circles sampler!

1 comment » | Blog, Recipes

Torstai

January 26th, 2023 — 8:02am

Update February 13 This post was incorrect. Removing Dave’s CPAP machine did NOT solve the problem of recurring false alarms from my Remunity pump. Further experimentation, however, did lead me to a solution: put a 100% freshly-charged battery into the pump every night before bed, or every 24 hours, if you’re not on a regular schedule like I am. (I put in a fresh cartridge every 48 hours) See this Post From The Future for more details: http://kayray.org/2023/02/12/sunday-46/

**************************

Good morning! I think we’ve solved it. No pump alarms last night, and every clue adds up perfectly. We need a few more alarm-free nights to be sure, of course, but the relief is almost overwhelming. I’m not crazy, I’m not jinxed, I should be able to use my new medication pumps with minimal problems. I will be able to SLEEP.

I will reiterate everything in this post for those in future who might have the same problem.

I’m a Pulmonary Hypertension patient on Remodulin (Treprostinil) I’ve just switched over from the CADD-MS3 sub-q system to the Remunity sub-q system (made by United Theraputics).

I immediately had a problem with the pump and its remote waking me up at night, over and over, with a wide variety of false alarms. This happened only at night. The company shipped a new set of pumps: same problem. They shipped a new set of internal batteries: same problem.

The pump and its remote are sensitive to RF interference, so I tried disabling my Bluetooth devices at night (illogical, because if they were interfering at night they’d interfere in the daytime) and also my Apple Watch (same). Nothing helped. I spent every day for a whole week in tears from sleep deprivation and anxiety.

Finally in desperation I tried sleeping in the guest room. No alarms. Ok, so what was different about my bedroom? Henry, wonderful Henry, suggested Dave’s CPAP machine. I said nah, he hasn’t used it in months, but then Dave realized that his CPAP machine was still plugged in and phoning home to Kaiser at RANDOM TIMES OVERNIGHT using cellular, which is a very strong RF signal — stronger than Bluetooth and wifi.

He unplugged his machine and for good measure moved it to the opposite end of the house and I took a chance on sleeping in my own bed again.

No alarms last night. None. NO FALSE ALARMS.

So if you, too, are using the Remunity system and are experiencing false alarms, check for CPAP machines or other equipment that might be automatically phoning home during the time that you’re getting the alarms!

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Keskiviikko

January 25th, 2023 — 6:07pm

Much to report!

Slept in the guest room last night. I woke up many times from pain, nausea, and headache but there were NO FALSE ALARMS from my medication pump. So my overall quality of sleep was ok-ish and I felt human again today, if fatigued. I also had the great relief of thinking, ok, well, if we can’t figure it out I can just sleep in the guest room forever. Sigh.

When I gave this status update in our group chat, wondering what on earth is different about our bedroom at night, Henry asked if it could be Dave’s CPAP machine. I said no, ‘cause he hasn’t used it in months. But then Dave said AH HA! The CPAP machine is still plugged in and it phones home to Kaiser in the night to transmit diagnostics over cellular, which is a strong RF signal (stronger than Bluetooth or wifi).

This would explain everything. Why the false alarms only happen in the bedroom. Why they only happen at night. I almost don’t dare to hope, because if this is not the solution then… yeah well let’s not think about that. The CPAP machine is now unplugged. I’ve moved all my sleeping equipment back into our bedroom. My fingers are crossed.

I thought very hard about baking cookies today and set out the butter and eggs but then I ran out of steam and decided I’d be better off not pushing myself too hard on only a semi-decent night of sleep. Butter and eggs can sit on the counter overnight. It’s encouraging that the thought of baking even crossed my mind. It’s been since before Christmas that such a thing even seemed possible.

My wonderful palliative care nurse, Adam, called yesterday to check on me and set up an appointment for a visit. I told him I’m really worried about how out-of-condition I am now after lying in bed for a month, but that it makes me really nervous to do my stupid boring little exercises in case my heart rate elevates and doesn’t go back down. It’s SCARY to be this weak and fragile. I can barely lift anything. I can barely walk. I’m sure if I could do a little bit of safe exercise and strengthen my muscles I’d feel stronger and better.

Adam said he should be able to get a home healthcare person to come over and help me with my exercises, and suggest others, and monitor me while I do them so I don’t feel so fearful! He’ll be here next week for our appointment and then he can set me up with that service.

Still eating like a horse. Oatmeal for breakfast today, and then an absolutely JUMBO quesadilla for lunch. A month ago it would have taken me two days to eat that much. Not sure about dinner. It’s 6pm now and I’m still full from lunch, so I’ll probably fix an apple and cheese to munch on while I get sleepy, and then snack on mini pretzels and peanut M&Ms (which is an amazing combo, btw. Sweet and salty and nutty and crunchy)

Discovered that I had totally missed the second season of the Killer Psyche podcast, thanks to Amazon Music’s abysmal app design, with the result that I’ve had lots of new-to-me episodes to binge over the last couple of days. As of now, though, I truly have only one unplayed episode. I’ll switch back over to the Something Was Wrong podcast next. Have also been enjoying old episodes of The Taskmaster Podcast. That one soothed me back to sleep several times last night.

I stopped having any luck with the “Nothing Much Happens” bedtime stories podcast. I think I need to be at an exact level of sleepiness before I put it on or it just bores me to tears and irritates me. It makes me think about sleeping, too, which is counterproductive for me. I need to sneak up on sleep from behind and pop a bag over its head by listening to something of the exact right interestingness so that I can tell myself, “it doesn’t matter if I fall asleep, I’ll just listen to this lecture about the history of English or this silly moment-by-moment analysis of a Taskmaster episode until morning”. And that can help me get to sleep.

Another trick I use to settle my mind is to type out a mental transcript of whatever I’m listening to. So I actually see the words printing out on a sort of ticker tape in my imagination. When my mind wanders, I bring it back to its transcription task. This has been working pretty well lately.

3 comments » | Blog

Tiistai

January 24th, 2023 — 5:43pm

Good news and bad news. No false alarms in the night with my Apple watch on the dock instead of my wrist. (But there was one at 7:30am when I was already awake.) However, I had a terrible night anyway. Dave’s back was hurting when he came to bed (I was already asleep) and his moaning and groaning and snoring woke me up and I lay there for two hours before falling back asleep. And then I had to get up three times to pee, and had unquenchable thirst, and stomach issues, and a variety of pain, and my brain was hypervigilant, expecting BEEP BEEP BEEP at any second, so every tiny noise woke me up through my ear plugs.

And the bad news is that I was unable to trigger a false alarm in the daytime. This is bad news because it proves my hypothesis wrong. I strapped the pump’s remote to my wrist to keep it near my watch all day. I started an infusion site in the middle of a big patch of scar tissue (from stabbing myself with a needle every other day for six years) in case scar tissue was clogging things up. (I also have a scar-free site started for nighttime, just in case it IS a problem, and that’s why I’m having intense pain at night. This medication is so vile that it causes horrible, unspeakable pain while your body gets used to it. Old scarred site is used to it; new unscarred site is not)

Tonight I’ll sleep in guest room for real, if only to eliminate Dave’s moaning and groaning and snoring until my brain chills out and learns to sleep through it again. Maybe, magically, there will be no false alarms. Maybe.

So today I mostly cried and ate.

1 comment » | Blog

Maanantai

January 23rd, 2023 — 5:47pm

I woke up at about 5:30am wondering why my pump remote hadn’t woken me up that night with false alarms, and then awakened myself completely by analyzing the situation. Lol, thanks brain.

One thing was different — I usually wear my apple watch all night because it checks my heart rate and blood oxygenation several times and sends a record to my phone, and I sleep with my hands tucked under my pillow with my pump remote nearby, but last night I forgot to take my watch off the charger and wear it. Now… it certainly is an interesting coincidence. But I’ve had my watch and pump remote in close proximity for hours and hours in the daytime with no false alarms, so I’m not counting on this being the solution. I’ll leave my watch off again tonight and see what happens. It’s a possibility at least, and I’m clutching at straws.

Anyway I was up BRIGHT AND EARLY to take care of the clutter before the house cleaners came, and had to take a nap at 9am. Slept for a whole hour and then felt pretty ok for the rest of the day. House cleaners came at 1 so now the house is all clean and nice again. Though I made a stir fry for dinner and smoked the place up so it doesn’t smell quite as nice as it did when they left. Oops. It wasn’t even a fabulous stir fry. I overcooked some of the veggies, distracted by the shrieking of the smoke alarms, and undercooked the rice. Oh well, it was edible and put nutrition and calories into me.

We have finished all the peppermint bark I made over Christmas, but I still have a box of candy canes so all I need is some more chocolate and I can make another big batch. Peppermint bark: it isn’t just for Christmas!

I’ve finished sixty-five percent of my one hundred circles sampler! All the red, purple, violet, orange, and yellows are done. Now I’ve got the beautiful blues and greens remaining. Yes I did it that way on purpose. Blues and greens for dessert. Maybe tomorrow I’ll get a good photo. The sun is supposed to come out.

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Sunnuntai

January 22nd, 2023 — 5:26pm

Alarms in the night again. But all before 2am so I was able to go back to sleep each time. But then I had a ton of infusion site pain and stomach issues so I was up at 5am anyway. But then I dozed off on the sofa and went back to bed and slept for an hour. So yeah. I’m basically ok today. I’m tired of complaining about my pump alarms waking me up so here’s what we’re gonna do. You just assume that my pump wakes me up several times every night and I’ll tell you if it DOESN’T. Sigh. I’ve found contact info for United Theraputics so maybe I’ll call them on Monday, though that sounds like a miserable exercise in frustration.

I figured something out today. Our fruit, which we leave on the counter, goes bad really fast. REALLY fast, like we can’t leave an apple out for more than a week before it starts going wrinkly. In summer, sure, that’s what I’d expect, but in winter? In winter I’m used to being able to leave fruit out for weeks and weeks.

Today I realized that I’ve lived my entire life in houses that, in winter, are like 65° in the daytime and a lot colder at night. But Dave likes to keep the house at 70°! Our fruit thinks it’s summer all year! Lol! So I have just put the fruit bowl into the fridge.

Forgot to say last night I made a big bowl of very cheesy mashed potatoes for dinner — seriously, they were almost more cheese than potatoes — and I ate about half of them last night and the other half cold for breakfast this morning. Ate a nice big salad for lunch, some fruit and chocolate for snacks, and now I’m cooking some polenta and I’ll sauté some peppers and onions to put on it.

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Lauantai

January 21st, 2023 — 7:55am

Writing this at 7:50am. Awake since 3:45am, when my pump alarm went off. Bogus, again. Lay there awake waiting for the next alarm. When it went off I tried again to sleep but was too wired and anxious, so I got up and did all the dishes.

My pumps have an internal battery that’s supposed to be replaced once a year, so the specialty pharmacy had sent me a couple yesterday, in case the new set of pumps also gave me trouble, so now I’ve replaced THOSE.

Why do the bogus alarms only happen at night? Well, one happened in the afternoon once, but only once. All the others have been between midnight and 7am. Why, why, why.

I’m a wreck. I need to trust this equipment to keep me alive. United Theraputics, you suck at product design and reliability.

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Perjantai

January 20th, 2023 — 6:18pm

Awoken twice in the night by bogus Remunity pump alarms. One was LOW BATTERY, which turned out to be at 85%. The other was MOVE PUMP CLOSER TO INFUSION SITE, which, as stated before, is utter nonsense. But, this morning UPS dropped off a whole new set of pumps and remotes. Charged them up, paired them, got one going. Then did nothing but blackwork for the rest of the day. It’s so addicting! I keep thinking, I’ll stop after this circle and do something else… and then I just keep going. It’s satisfying to see the little geometric patterns coming together and filling out.

Wanna hear something stupid? My new pumps assume you are filling them with a certain amount of meds (2.2ml) that will last 70 hours. (don’t get me started on how stupid THAT is. Think about it.)

However, I need to change every 48 hours because of my adhesive allergy. So the pharmacy told me to put in 1.5 ml. But there is NO WAY to tell the pump that I’m putting in a smaller volume of meds. There’s literally no way. 2.2ml is hard-coded. So, it thinks I have almost three days worth of meds when in fact I have 48 hours. I hope. I can’t actually see how much is in the pump. So… I hope I measured correctly.

Luckily I’m smart enough to use a calendar and alarms to remind me when 48 hours are up so it doesn’t really matter. But… wow. Who signed off on THAT?

Did you figure out why filling a pump with 70 hours of medication is so stupid? People who put in 2.2 ml at 4pm one day need to change at 2pm the next time, then noon, then 10am, etc. Nurse says, when it gets to be too early in the morning, you do it the night before and start the whole countdown over again. Oh. My. God. You’d never be able to plan your life AT ALL. I’m glad my stupid adhesive allergy means I can just have a nice steady regular 48-hour plan.

So tired. Went to bed at 5pm. It’s still only 6. Ugh.

1 comment » | Blog

Torstai

January 19th, 2023 — 7:44am

Well last night sucked. Writing this in the early morning because I know by noon I’ll be unable to form a sentence. My new medication pump (well I should say the remote) woke me up five times between midnight and 6am. To be accurate it didn’t technically wake me up each time because sometimes I hadn’t managed to fall back asleep yet but you know what I mean.

  • Occlusion (unlikely)
  • Pump battery low (bs, it had 50% still)
  • Move pump closer to infusion site (total bs)
  • Occlusion (unlikely)
  • Move pump closer to infusion site (bs again)

So yeah. Not a happy camper, here. After the first two alarms I turned off all my Bluetooth stuff again in case there was interference but it obviously made no difference. SIGH.

Perhaps I’m doomed to never get a solid night of sleep again. We’ll see what Nurse Sarah has to say. I sent screenshots of each alarm so we have a paper trail of fail.

Also my dose of Remodulin is slightly higher now because of math so it’s affecting my stomach and causing more headaches. That’s temporary but not fun on top of poor sleep.

Gahhhhhh.

Maybe I’ll rewatch the third season of Succession today. Or restart Breaking Bad. I dunno. I’ll probably just listen to my podcasts all day with my eyes closed. Started a good one last night: The Teacher’s Pet

Season 5 of Something Was Wrong was a mixed bag. The first half of the season was a bit dull and I ended up skipping some episodes but then the second half — Rachel’s story — was gripping: growing up in a culty “church” with abusive parents. Started season six last night. A good catfishing story and a super-scary weirdo-predator story. Yikes.

Also yesterday I knit a few more inches of Henry’s sweater, stitched a few more circles on my blackwork sampler (got all the yellow out of the way as I knew it would be annoying to stitch yellow designs on white canvas), and started watching Fake or Fortune on the iPlayer. Oh, I also caught up on Happy Valley. Damn it’s a fine show!

Em, Chloe, and Mom all received their Christmas presents and seemed very happy. Em FaceTimed me and was so sweet and enthusiastic about everything I sent — handmade rainbow joggers, three bottles of sparkly nail polish, and the YA edition of Radium Girls. She told me with great pride that she could guess that a book about girls who glowed in the dark would be about radiation and said she couldn’t wait to start reading. *whew* I wasn’t sure if she’d graduated from her beloved Pete the Cat books yet but I took a chance. Lol.

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Keskiviikko

January 18th, 2023 — 7:25pm

Rough night. Tired day. Tomorrow will be better.

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