Ugh, pt 2
The less said about that hospital visit the better.
Upshot: They can’t fix my ASD. So that’s that — the last possibility for extending/improving my life. I also realized that, even if the implantable Remodulin pump is ever approved by the FDA, I won’t be able to tolerate the operation to install it — so that’s that too.
My throat, which got seriously messed up during the TEE, is starting to feel better and I can swallow real food again.
My body still hurts all over but I can move without actual agony so that’s nice I guess.
The adhesive-itch is still terrible and I’m trying hard not to claw my skin off.
Let’s think about Christmas instead! I’ve been listening to DJ Riko’s Mixmases :)
Category: Blog One comment »
December 11th, 2019 at 8:57 am
thinking of you! glad you’re back on real food.
yes lets look forward to Christmas. any decorations in your home?
what about public displays around you? any large community trees?