Remodulin

Over the past month I’ve been titrating my Remodulin dose up from 0.04 mL/hr, increasing by 0.002 mL/hour each week. Today I hit the goal of 0.05! The side effects have been minimal and tolerable, just slightly worse than my ordinary constant side effects — more stomach issues, nausea, diarrhea, joint pain, some insomnia — but NOT the constant migraines I got last time I increased my dose, thank goodness.

Might help me live a bit longer, so totally worth it!

Today was a Tired Day, but I did manage to sew some slippers for the little girls. I use this pattern, and have drafted larger sizes for larger feet:

https://thediymommy.com/sew-soft-baby-slippers/

Category: Blog Comment »


Leave a Reply



Back to top