Mastodon Thursday —


Excellent pulmonologist visit today! Dr Robinson is wonderful. He really listened to me, and he told me about some great new PAH drugs that are in clinical trials. And he’s gonna help me figure out my weight loss. And he’s letting me increase my remodulin dose! And he gave me his personal cell number to give to the ER docs next time I have an emergency so they’ll be able to give me appropriate care.

I stopped at New Seasons on the way home and had them make me a veggie, avo, and cheese sandwich with ALL the veggies on it. I swear it was three inches thick. I ate half when I got home, and the other half just now before bed. Plus I drank an Ensure this morning and had a little dish of ice cream. Not enough calories but a lot better than nothing.

Category: Blog 2 comments »

2 Responses to “Thursday”

  1. Soozan

    Getting good news and a nice doctor always helps my appetite

  2. Kathy

    Wow, that is such a relief to hear about your doctor who listens, has some new treatment ideas, will support you in increasing the remodulin and who gave you his phone number!

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