Friday
I ate several things today: an Ensure, two small dishes of tabbouli, two small dishes of ice cream, and some grapes!
My doc gave me the ok to start raising my treprostinil (remodulin) dose, so I cranked my pump up from .032 to .034 ml/hr and the side effects are hitting hard. Headache, nausea, and facial flushing. That’s ok — my body will get used to it and I should feel a lot better someday.
Stayed in bed all day again, but my mood is better.
Category: Blog One comment »
April 16th, 2022 at 7:56 pm
Good to hear. Ice cream sounds like a really good idea if you can tolerate it. I’m so grateful you’re taking care of yourself, Kara. <3