Wednesday
Slept late thank goodness, after last night’s puking funtimes, and then at 11:00 Nurse Adam from the Signature palliative care organization came over for our first meeting. It went great! He will help me coordinate all my complicated care, and he really really listened.
I’m down to 99.4 pounds this morning. Adam will help me make the docs figure out wtf is going on. I’ve sent messages to them all, begging for help. My most recent thyroid function tests came back last week but no one has contacted me! My results are really odd — very high T4 and TSH, very low T3. So I’m hyper- and hypo-thyroid at the same time. Because of course I am.
Ah! My pulmonologist just called re: my thyroid levels. He says it’s very very strange and he doesn’t know what to do, so he is going to try to get me an urgent endocrine appointment (the soonest I could get an appointment was end of June). So that will be helpful.
Category: Blog 2 comments »
April 21st, 2022 at 9:27 am
im sorry its been confusing for you and the md team but i hope they figure it out soon . glad you will get seen urgently. thinking of you
April 21st, 2022 at 9:45 am
Glad you have someone who can go to bat for you, Kara. I love you.