I couldn’t tolerate the endless relentless nausea so i stopped taking my antibiotics today. I know, i know. But i was only taking them to prevent pneumonia and my cough is starting to get better and I just can’t bear it. So i had a couple of nausea-free hours today which was great.
The nausea is back again now; i suppose my gut flora is still messed up. Please please please let the nausea be gone tomorrow. This is all getting to be more than i can handle. Seriously.
I’m so sick. I was totally fine yesterday and I feel SO AWFUL now. Brutal cough and headache, and as usual everything everything everything hurts. Doc put me on antibiotics to try to avoid pneumonia. (no fever; not the new Coronavirus)
I’m still here! I got over my virus and felt ok for a few days, and now I’ve caught something again. Coughed all night. Arghhhhh. Gonna try to get a walk-in doc appt today.
I’m still sick but on the mend. I think maybe I don’t have a headache right now, for the first time in days. It’s just the stupid cough that lingers and lingers and lingers. My lungs are so messed up that with every coughing fit I feel like I might pass out. Ah well. I never had a sore throat with this one so it’s all good.
My reading-tracker app (iReadItNowHD) broke in iOS 13 and I’m tired of waiting for the guy to fix it, so over the last few days, when not napping or coughing, I’ve been manually entering alllllllll my reading data into goodreads.com. I do not like goodreads — I’ve been avoiding it for years. So many ads; ugly, cluttered, clunky interface. ALL I WANT in a reading tracker is to be able to keep track of what I read and when I read it, a wishlist, and the ability to bookmark my current book in either page numbers or a percentage. But one small independent iPhone app after another keeps going belly-up (first Readmore, then iReadItNowHD) so I guess I’ll just switch over to goodreads and be done with it.
Not sure why goodreads has decided that I’m an author. Someone must have put me in as a librivox narrator and it got confused? Anyway if you scroll down past the books I didn’t write (dracula, etc.) you’ll get to my actual data, like what I’m currently reading. Two of them (Standard Deviation and Because Internet) are instant re-reads because I loved them so much the first time!
Still sick. This is a really odd virus. It was mild till last night but then I was awake all night with a cough, ferocious headache, severe back/shoulder/neck/knee/foot/etc. pain, and a strange speedy feeling. (I didn’t eat or drink anything unusual the day before and of course never any caffeine, but all night i felt like i was WIRED on coffee.)
I lay there and listened to an audiobook all night. Figured I’d sleep today but NOPE. So I can only hope that I get some nice normal sleep tonight.
(I wrote and scheduled the previous two posts a few days ago. Not feeling well enough to fiddle with podcast feeds)
Hello my dears, I’m still sick but not miserable, so I created a podcast feed for my old recording of Charlie and the Chocolate Factory. Copy/paste this link into your favorite podcast app to subscribe :)
Hi everyone — Happy New Year! It’s 2020 (first time I’ve written it) and we live in the future.
I’ve been fairly exhausted since Christmas and not up to much. Lots of lying in bed, watching foreign murder shows, listening to audiobooks, and playing Breath of the Wild. Came down with a little cold last night but I don’t think it will be a bad one — no sore throat (yet, cross your fingers), just a bit of a drippy nose and cough. So today will be another extremely lazy day.
Breath of the Wild is an AMAZING game. It took me a while to get the fact that it’s non-linear, and that I can play in any way I want. I’m too much of a weakling to do much fighting but I have hours and HOURS of fun running around the world looking for seeds, shrines, and towers. The open world is astonishingly varied and beautiful. I’m in a sort of jungle terrain now, in the south part of the map. There are banana trees, and it just pours rain most of the time — the rain seems wetter than the rain in the northern zones, and I find myself looking for shelter so I can dry off for a while. Ha!
Marian Keyes is my favorite living author, a recovering addict, a survivor of serious depression and anxiety, a mental health advocate, and an all-around delightful person! She has made a 14-minute video all about taking care of yourself, and being kind to yourself, at Christmastime. It’s important!
Much of this advice is stuff I figured out on my own, long ago, and I think it is one reason why I love Christmas. I try hard not to stress about anything. Not everyone gets a homemade present, or even a present at all. I cook and bake as much as I like, and no more. No Christmas cards. My tree gets smaller every year as my energy wanes — but it’s still beautiful! I hide in my room when things get loud or overwhelming.
Marian’s advice about getting through a hard day is useful in any situation. On days with difficult, stressful medical stuff, I tell myself, ok, in twelve hours (or whatever) this will all be over. I can get through twelve hours.
Merry Christmas! Take care of yourself! If you, like Marian and me, suffer from anxiety and/or depression, keep a help line handy in your phone or follow @SarahMillican75 on twitter — she does a #JoinIn event on Christmas if you’re feeling lonely (or too crowded) and need to have a chat with some friendly internet people :)
Here’s another Christmas audiobook for you! The Best Christmas Pageant Ever, by Barbara Robinson. It’s funny and heartwarming and very Christmassy :) Those Herdmans are the worst kids ever!
This is your yearly reminder that I made a recording of Charles Dickens’s “A Christmas Carol” for librivox a few years ago. I just listened to it while I had a nap. It’s a very good recording, if I do say so myself :)
I love Christmas music, all sorts. From traditional to novelty to pop, and (almost) everything along the spectrum, the tacky and the glorious, the beautiful and the silly. (Though I’m not a fan of angelic children’s choirs or goopy harp-filled schmaltz. I’m more an up-tempo girl, I guess.) Right at this moment I’m listening to the Robert Shaw Chorale, “Christmas Hymns and Carols”, which is an absolutely perfect traditional, unaccompanied, non-ornate, SATB choir recording. Here’s a YouTube playlist of the whole recording:
I’ve mentioned Mixmas here quite a few times, and I’m not going to stop mentioning it. Ever. http://djriko.com/mixmases.htm
A gem from Mixmas 2019 is “Every Single Christmas” by JD McPherson. Here’s a live recording:
From tracking down that song, I discovered that JD has a whole Christmas album of original Christmas songs, “Socks”. The official YouTube videos have charming, simple animation and lyrics, which Em really enjoys!
Another favorite this year is “Santa’s Coming for Us” by Sia. This all-star, lip-synced video is so charming! (Wait past the slow B&W intro. It gets good.)
A couple of favorites from last year are a cover of “Rise Up Shepherd” by Twin Bandit and a cover of “You’re a Mean One, Mister Grinch” by Small Town Titans:
I’ll stop for now, and assault you with more of my favorite Christmas music next time! :)
While reading the chapter about electric Christmas lights and bulbs, I added a little note about our old antique Santa bulb! Here it is. I don’t know whether it was originally from the Shallenberg side or the Jacobs side, but it’s really old for sure! Behind Santa you can see a reproduction of one of the old German ornaments made of cotton batting and crinkled wire in the shape of a bird’s nest.
Also, the text mentions the custom of making a little village, farm, or nativity scene under or near the tree. That’s totally a tradition in my family, too, maybe from my German heritage (on both sides). What traditions or special old ornaments do you treasure?
Dram – Litmas JD McPherson – Every Single Christmas Margo Guyen – I Don’t Intend to Spend Christmas Without You Josh Rouse – Sleigh Brother Bill Sufjan Stevens – Put the Lights on the Tree Bailen – Christmas is All Around Hoodoo Gurus – Tojo The Magnetic Fields – Everything is One Big Christmas Tree Sia – Santa’s Coming for Us New Order – Rocking Carol The Regrettes – Marshmallow World James Brown – Santa Claus go Straight to the Ghetto Justine Skye – Eyes for You Satan’s Pilgrims – Feliz Navidad Livingmore – Show me Light and Love Jagged Jaw – Pink Xmas Tree Beach Boys – Little Saint Nick (Alternate Version) Tralala – Holiday Hearts Cocteau Twins – Winter Wonderland Redtenbacher’s Funkestra – Deck the Halls The Duke Spirit – Melt by the Morning The Grip Weeds – God Rest Ye Merry Gentlemen The Silhouettes – Under the Mistletoe The Oh Hellos – Every Bell on Earth Will Ring
I haven’t finished the whole thing yet (Henry and I are listening together when we have time) but the second bit — “JD McPherson – Every Single Christmas” — is so good that I went looking for the song to add to my Christmas music collection, and discovered that JD McPherson has a whole album of original Christmas music called “Socks” and it’s great!! (Be sure to watch some of his live performances on youtube!) You can buy “Socks” on iTunes and other places. The whole youtube playlist is here:
I have plans, eventually, to write up a review of every single Mixmas and point you to my favorite parts ’cause there’s always something that just rocks my socks that I never would have heard otherwise… Right now I’m listening to 2014, which is such a good one! Liz Phair’s Ho Ho Ho “Doing shots of room-temperature peppermint schnapps while the yule log on tv crackles and pops…” (I always skip the Crash Test Dummies bit, though. That’s ok – every Mixmas has a clunker or two, the aural equivalent of the Ugly Christmas Sweater :)
The less said about that hospital visit the better.
Upshot: They can’t fix my ASD. So that’s that — the last possibility for extending/improving my life. I also realized that, even if the implantable Remodulin pump is ever approved by the FDA, I won’t be able to tolerate the operation to install it — so that’s that too.
My throat, which got seriously messed up during the TEE, is starting to feel better and I can swallow real food again.
My body still hurts all over but I can move without actual agony so that’s nice I guess.
The adhesive-itch is still terrible and I’m trying hard not to claw my skin off.
Let’s think about Christmas instead! I’ve been listening to DJ Riko’s Mixmases :)
Horrible horrible day. Up at 4:30am to get to UCSF hospital by 6:30am. They wanted to do a TEE (trans esophageal echo), then a heart cath, a balloon occlusion test, and potentially fix my ASD.
So I had general anesthesia while they did all kinds of stuff to me.
Woke up at 11:30 with the world’s worst sore throat from tubes being shoved down it.
Turned out that they couldn’t fix my ASD after all, so it was all in vain.
Lay around in bright busy noisy recovery room for hours in pain, weeping.
Finally got real room around 6pm. Had giant fight to get them to remove all adhesives including IV and monitors. Haven’t eaten or drunk anything but 2 cranberry juice boxes in 26 hours. Still waiting for soup to arrive. Throat hurts too much for real food.
I have made a podcast feed for my recording of The Apple Stone, a beautiful magical adventure by playwright Nicholas Stuart Gray about 5 siblings and cousins who find a magical golden stone in the middle of an apple. I LOVE THIS BOOK!!!
Copy and paste this RSS link into your favorite podcast app: